Overview of collected data

KoGES has started to collect data since 2001. As of 2014, 245,000 cohort data has been constructed. Since 2012, the project has been expanded to overall follow-up study investigation.

KoGES_Ansan and Ansung study

The investigation for Ansung and Ansan started in 2001. From 2001 to 2002, 10,030 cohort data was collected through baseline survey.

The number of collected data

The number of collect data (Family)

Overview of collected data

KoGES_cardiovascular disease association study(CAVAS)

The KoGES_cardiovascular disease association study(CAVAS) started in Yangpyeong, Namwon, and Goryeong in 2004. The project expanded to Wonju and Pyeongchang in 2005 and to Ganghwa in 2006. Currently, 3rd follow-up study is being inspected in 6 regions.

The number of collected data from Yangpyeong, Namwon, and Goryeong

Overview of collected data of Yangpyeong, Namwon, and Goryeong

The number of collected data from Wonju and Pyeongchang

Overview of collected data of Wonju and Pyeongchang

The number of collected data from Ganghwa

Overview of collected data of Ganghwa

KoGES_health examinees(HEXA) study

The KoGES_health examinees(HEXA) study has collected biospecimen data from 173,420 participants since 2004. The first phase of the follow-up was initiated in 2007 and is currently ongoing.

The number of collected data

Overview of collected data

KoGES_twins and family study

The full-scale investigation started in 2006, and cohort data of 3,410 individuals was collected until 2013. The first follow-up examination for the early participants of beseline study was started in 2008 and continued until 2014.

The number of collected data

Overview of collected data

KoGES_emigrant study

The number of collected data from Kobe, Japan

The number of collected data from Yenben, China

The number of collected data from Changchun, China

Overview of collected data

KoGES_immigrant study

The baseline investigation was conducted in 2006 targeting East Asian females who have been married to Korean males, and their children and spouses. Since 2012, full-scale investigation has been conducted. For international cooperation cohort, baseline inspections were conducted in Vietnam, 2007 and Cambodia, 2009.

The number of collected data for adult

Overview of collected data for adult

The number of collected data for child

Overview of collected data for child

The number of collected data (international cooperation cohortⅡ)

Overview of collected data (international cooperation cohort Ⅱ)

Epidemiological Data Online Sharing

When researchers want to conduct studies using cohort epidemiological data (questionnaire, diet, medical record, etc.), online Sharing service from the division of epidemiology and health index is available.

For those who want to apply for using bioresources (blood, DNA, urine, etc.) or genomic data (SNP, etc.), please contact the National Biobank of Korea ( http://koreabiobank.re.kr, 1661-9070)

※ NBK Bioresources Sharing Guide [download]

▣ Sharing Application Requirements
To use the resources, researchers must be affiliated to the institutions (university, hospital, research institutes, etc). Ethical review result from institution’s IRB must be submitted. In the absence of separate research funds, applying for using epidemiological data is still permitted.

▣ Required documents
Required documents of using data are ①Epidemiological data Sharing application form, ②IRB approval form, ③Research plan, ④List of required variables.
Epidemiological data Sharing application can be filled out online. IRB approval form, research plan, and list of required variables can be uploaded online.

※ Checklist √ Is every application document submitted? (Application form, IRB approval form, research plan, and list of required variables) √ Is research project title same on every document? √ Compared to total research period in research plan, is IRB approval period long enough? √ Does research plan sufficiently include a specific planning using cohort data?

▣ Approval Notification and Epidemiological Data Download
Once a week, swift deliberation committee decides whether the data Sharing is approved or not. Once approved, researchers submit (mail or in person) collection and use of personal information consent form and data use agreement form, and then final approval will be notified. Data can be downloaded for a week after the final approval.
※ Collection and use of personal information consent form and data use agreement form

▣ Data Disposal and Outcome Registration
After the expiration of data using period, researchers dispose the shared data and submit ‘disposal confirmation form’. Research outcome needs to be submitted to CDC within 3 months.
※ Disposal confirmation form

▣ For international researchers
Individual data sharing with international researchers is restricted, but international collaboration using meta-analysis is possible.

Data Sharing Process